Please use this identifier to cite or link to this item: https://doi.org/10.1186/s12904-016-0177-5
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dc.titleA good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making
dc.contributor.authorDelany, C
dc.contributor.authorXafis, V
dc.contributor.authorGillam, L
dc.contributor.authorHughson, J.-A
dc.contributor.authorHynson, J
dc.contributor.authorWilkinson, D
dc.date.accessioned2020-10-27T10:30:52Z
dc.date.available2020-10-27T10:30:52Z
dc.date.issued2017
dc.identifier.citationDelany, C, Xafis, V, Gillam, L, Hughson, J.-A, Hynson, J, Wilkinson, D (2017). A good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making. BMC Palliative Care 16 (1) : 12. ScholarBank@NUS Repository. https://doi.org/10.1186/s12904-016-0177-5
dc.identifier.issn1472684X
dc.identifier.urihttps://scholarbank.nus.edu.sg/handle/10635/181302
dc.description.abstractBackground: Communication with parents about end-of-life care and decisions is a difficult and sensitive process. The objective of the present study was to ascertain clinicians' views on the acceptability and usefulness of a handbook and web-based resource (Caring Decisions) that was designed as an aid for parents facing end-of-life decisions for their child. Methods: Qualitative interviews were conducted with a range of health professionals who provide care to children facing life-limiting conditions. Results: Data analysis confirmed the acceptability and usefulness of the resource. Two major themes were revealed: 1. Family empowerment, with sub-themes Giving words and clarity, Conversation starter, 'I'm not alone in this', and A resource to take away, highlighted how the resource filled a gap by supporting and enabling families in a multitude of ways; 2. Not just for families, with sub-themes A guide for staff, When to give the resource?, How to give the resource and Who should give the resource?, explored the significant finding that participants viewed the resource as a valuable tool for themselves, but its presence also brought into relief potential gaps in communication processes around end-of-life care. Conclusion: The interview data indicated the positive reception and clear value and need for this type of resource. However, it is likely that successful resource uptake will be contingent on discussion and planning around dissemination and use within the health care team. © 2017 The Author(s).
dc.rightsAttribution 4.0 International
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.sourceUnpaywall 20201031
dc.subjectchild
dc.subjectconsumer health information
dc.subjectconversation
dc.subjectdata analysis
dc.subjectdecision making
dc.subjectdoctor patient relation
dc.subjectempowerment
dc.subjectfamily
dc.subjecthuman
dc.subjecthuman experiment
dc.subjectinterview
dc.subjectpediatrics
dc.subjectterminal care
dc.subjectbehavior
dc.subjectbook
dc.subjectclinical decision making
dc.subjectethics
dc.subjectevaluation study
dc.subjecthealth personnel attitude
dc.subjecthuman relation
dc.subjectInternet
dc.subjectnewborn
dc.subjectprocedures
dc.subjectpsychology
dc.subjectpublic relations
dc.subjectsatisfaction
dc.subjectterminal care
dc.subjectterminally ill patient
dc.subjectutilization
dc.subjectAttitude of Health Personnel
dc.subjectChild
dc.subjectClinical Decision-Making
dc.subjectFamily
dc.subjectHumans
dc.subjectInfant, Newborn
dc.subjectInternet
dc.subjectInterprofessional Relations
dc.subjectPersonal Satisfaction
dc.subjectPower (Psychology)
dc.subjectProfessional-Family Relations
dc.subjectTerminal Care
dc.subjectTerminally Ill
dc.subjectTextbooks as Topic
dc.typeArticle
dc.contributor.departmentDEAN'S OFFICE (MEDICINE)
dc.description.doi10.1186/s12904-016-0177-5
dc.description.sourcetitleBMC Palliative Care
dc.description.volume16
dc.description.issue1
dc.description.page12
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