Please use this identifier to cite or link to this item: https://doi.org/10.1186/s12904-016-0177-5
Title: A good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making
Authors: Delany, C
Xafis, V 
Gillam, L
Hughson, J.-A
Hynson, J
Wilkinson, D
Keywords: child
consumer health information
conversation
data analysis
decision making
doctor patient relation
empowerment
family
human
human experiment
interview
pediatrics
terminal care
behavior
book
clinical decision making
ethics
evaluation study
health personnel attitude
human relation
Internet
newborn
procedures
psychology
public relations
satisfaction
terminal care
terminally ill patient
utilization
Attitude of Health Personnel
Child
Clinical Decision-Making
Family
Humans
Infant, Newborn
Internet
Interprofessional Relations
Personal Satisfaction
Power (Psychology)
Professional-Family Relations
Terminal Care
Terminally Ill
Textbooks as Topic
Issue Date: 2017
Citation: Delany, C, Xafis, V, Gillam, L, Hughson, J.-A, Hynson, J, Wilkinson, D (2017). A good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making. BMC Palliative Care 16 (1) : 12. ScholarBank@NUS Repository. https://doi.org/10.1186/s12904-016-0177-5
Rights: Attribution 4.0 International
Abstract: Background: Communication with parents about end-of-life care and decisions is a difficult and sensitive process. The objective of the present study was to ascertain clinicians' views on the acceptability and usefulness of a handbook and web-based resource (Caring Decisions) that was designed as an aid for parents facing end-of-life decisions for their child. Methods: Qualitative interviews were conducted with a range of health professionals who provide care to children facing life-limiting conditions. Results: Data analysis confirmed the acceptability and usefulness of the resource. Two major themes were revealed: 1. Family empowerment, with sub-themes Giving words and clarity, Conversation starter, 'I'm not alone in this', and A resource to take away, highlighted how the resource filled a gap by supporting and enabling families in a multitude of ways; 2. Not just for families, with sub-themes A guide for staff, When to give the resource?, How to give the resource and Who should give the resource?, explored the significant finding that participants viewed the resource as a valuable tool for themselves, but its presence also brought into relief potential gaps in communication processes around end-of-life care. Conclusion: The interview data indicated the positive reception and clear value and need for this type of resource. However, it is likely that successful resource uptake will be contingent on discussion and planning around dissemination and use within the health care team. © 2017 The Author(s).
Source Title: BMC Palliative Care
URI: https://scholarbank.nus.edu.sg/handle/10635/181302
ISSN: 1472684X
DOI: 10.1186/s12904-016-0177-5
Rights: Attribution 4.0 International
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