Please use this identifier to cite or link to this item: https://doi.org/10.1186/s12885-018-4356-z
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dc.titleCost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS): Prospective cohort study protocol
dc.contributor.authorTeo, I
dc.contributor.authorSingh, R
dc.contributor.authorMalhotra, C
dc.contributor.authorOzdemir, S
dc.contributor.authorDent, R.A
dc.contributor.authorKumarakulasinghe, N.B
dc.contributor.authorYeo, W.L
dc.contributor.authorCheung, Y.B
dc.contributor.authorMalhotra, R
dc.contributor.authorKanesvaran, R
dc.contributor.authorYee, A.C.P
dc.contributor.authorChan, N
dc.contributor.authorWu, H.Y
dc.contributor.authorChin, S.M
dc.contributor.authorAllyn, H.Y.M
dc.contributor.authorYang, G.M
dc.contributor.authorNeo, P.S.H
dc.contributor.authorNadkarni, N.V
dc.contributor.authorHarding, R
dc.contributor.authorFinkelstein, E.A
dc.date.accessioned2020-09-09T10:08:10Z
dc.date.available2020-09-09T10:08:10Z
dc.date.issued2018
dc.identifier.citationTeo, I, Singh, R, Malhotra, C, Ozdemir, S, Dent, R.A, Kumarakulasinghe, N.B, Yeo, W.L, Cheung, Y.B, Malhotra, R, Kanesvaran, R, Yee, A.C.P, Chan, N, Wu, H.Y, Chin, S.M, Allyn, H.Y.M, Yang, G.M, Neo, P.S.H, Nadkarni, N.V, Harding, R, Finkelstein, E.A (2018). Cost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS): Prospective cohort study protocol. BMC Cancer 18 (1) : 459. ScholarBank@NUS Repository. https://doi.org/10.1186/s12885-018-4356-z
dc.identifier.issn1471-2407
dc.identifier.urihttps://scholarbank.nus.edu.sg/handle/10635/175390
dc.description.abstractBackground: Advanced cancer significantly impacts quality of life of patients and families as they cope with symptom burden, treatment decision-making, uncertainty and costs of treatment. In Singapore, information about the experiences of advanced cancer patients and families and the financial cost they incur for end-of-life care is lacking. Understanding of this information is needed to inform practice and policy to ensure continuity and affordability of care at the end of life. The primary objectives of the Cost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS) cohort study are to describe changes in quality of life and to quantify healthcare utilization and costs of patients with advanced cancer at the end of life. Secondary objectives are to investigate patient and caregiver preferences for diagnostic and prognostic information, preferences for end-of-life care, caregiver burden and perceived quality of care and to explore how these change as illness progresses and finally to measure bereavement adjustment. The purpose of this paper is to present the COMPASS protocol in order to promote scientific transparency. Methods: This cohort study recruits advanced cancer patients (n = 600) from outpatient medical oncology clinics at two public tertiary healthcare institutions in Singapore. Patients and their primary informal caregiver are surveyed every 3 months until patients' death; caregivers are followed until 6 months post patient death. Patient medical and billing records are obtained and merged with patient survey data. The treating medical oncologists of participating patients are surveyed to obtain their beliefs regarding care delivery for the patient. Discussion: The study will allow combination of self-report, medical, and cost data from various sources to present a comprehensive picture of the end-of-life experience of advanced cancer patients in a unique Asian setting. This study is responsive to Singapore's National Strategy for Palliative Care which aims to identify opportunities to meet the growing need for high quality care for Singapore's aging population. Results will also be of interest to policy makers and researchers beyond Singapore who are interested to understand and improve the end-of-life experience of cancer patients. © 2018 The Author(s).
dc.sourceUnpaywall 20200831
dc.subjectadult
dc.subjectadvanced cancer
dc.subjectArticle
dc.subjectawareness
dc.subjectbereavement
dc.subjectcancer mortality
dc.subjectcancer prognosis
dc.subjectcaregiver burden
dc.subjectcohort analysis
dc.subjectdaily life activity
dc.subjectdistress syndrome
dc.subjectemotionality
dc.subjectfunctional status
dc.subjecthealth belief
dc.subjecthealth care cost
dc.subjecthealth care delivery
dc.subjecthealth care quality
dc.subjecthealth care utilization
dc.subjecthuman
dc.subjectmedical care
dc.subjectmedical decision making
dc.subjectmetastatic breast cancer
dc.subjectpatient participation
dc.subjectpatient preference
dc.subjectphysical well-being
dc.subjectprospective study
dc.subjectprostate cancer
dc.subjectpublic health service
dc.subjectquality of life
dc.subjectSingapore
dc.subjectterminal care
dc.subjecttertiary health care
dc.subjectaged
dc.subjectattitude to health
dc.subjectclinical protocol
dc.subjectcritical illness
dc.subjecteconomics
dc.subjecthealth survey
dc.subjectmental stress
dc.subjectmiddle aged
dc.subjectpatient attitude
dc.subjectpsychology
dc.subjectseverity of illness index
dc.subjectyoung adult
dc.subjectAdult
dc.subjectAged
dc.subjectClinical Protocols
dc.subjectCritical Illness
dc.subjectHealth Care Costs
dc.subjectHealth Expenditures
dc.subjectHealth Knowledge, Attitudes, Practice
dc.subjectHumans
dc.subjectMiddle Aged
dc.subjectPatient Acceptance of Health Care
dc.subjectPublic Health Surveillance
dc.subjectQuality of Life
dc.subjectSeverity of Illness Index
dc.subjectSingapore
dc.subjectStress, Psychological
dc.subjectYoung Adult
dc.typeArticle
dc.contributor.departmentDUKE-NUS MEDICAL SCHOOL
dc.contributor.departmentMEDICINE
dc.description.doi10.1186/s12885-018-4356-z
dc.description.sourcetitleBMC Cancer
dc.description.volume18
dc.description.issue1
dc.description.page459
dc.published.statePublished
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