SOCIAL CONSTRAINTS AND LIVED EXPERIENCES IN SCHOOL: AN EXPLORATORY STUDY ON ADOLESCENTS WITH INFLAMMATORY BOWEL DISEASE IN SINGAPORE

Abstract

In the recent decade, global incident rates of Inflammatory Bowel Disease (IBD) have been on the rise. Having chronic diseases such as IBD as an adolescent can be challenging given the complex issues associated with this life stage. Existing literature was found to focus primarily on medical aspects using quantitative methods with Western populations. Hence, this exploratory qualitative study sought to better understand the lived experiences of adolescents with IBD in Singapore. Specifically, the study looked at their experiences in school as well as circumstances surrounding social constraints. Using thematic analysis and semi-structured interviews, 10 adolescents studying in Singapore were interviewed. Key findings on their lived experiences include aspects such as (1) identity, (2) feelings of being left out, (3) affected school life, (4) bullying, (5) support from friends, (6) school environment, and (7) insights gained from life experiences. Key findings on social constraints include factors such as: (1) perceived behaviours of peers, (2) stigma associated with disease, (3) lack of access to individuals willing to listen and/or provide comfort, and (4) inappropriate and insensitive responses from peers. Overall, results from this study provide insights as to how social workers, medical practitioners, schools, teachers, and peers can better support adolescents with IBD.