Health-related quality of life of caregivers of people with Parkinson's disease in Singapore

Abstract

Introduction: To investigate the health-related quality of life (HRQoL) of caregivers for people with Parkinson's disease (PD) living in Singapore. Methods: A face-to-face survey was conducted with a cross-section of caregivers for people with PD. The caregivers were recruited from a PD clinic at an acute tertiary hospital in Singapore and from the members of the Singapore Parkinson's Disease Society. HRQoL was quantified using the SF-36v2® Health Survey, an internationally validated multi-purpose short-form health survey. Results: Ninety-four caregivers completed the survey (a response rate of 57.3%). The respondents were all above 21 years old, with most falling in the 51 and >61 years age range. Seventy-four of the respondents (78.7%) were female. As a whole, the caregivers scored lower in all 6 health domains compared to the general population (adjusted for age, gender and ethnic group) in Singapore. The were significant differences for the "Role Physical" and the "Role Emotional" domains, at 3.9 and 3.3 respectively. Caregivers had a much lower mental component summary (-2.4) when compared to the physical component summary (-1.6). Conclusion: It is important to identify the factors that influence the HRQoL of caregivers so that policies can be developed to lower the burden of PD on caregivers. Assessing the well-being of caregivers may help to identify individuals at risk. The well-being of caregivers has the potential to influence quality of life of people with PD.