Please use this identifier to cite or link to this item: https://doi.org/10.1136/medethics-2017-104550
Title: Consent and the ethical duty to participate in health data research
Authors: Ballantyne A.
Schaefer G.O. 
Issue Date: 2018
Publisher: BMJ Publishing Group
Citation: Ballantyne A., Schaefer G.O. (2018). Consent and the ethical duty to participate in health data research. Journal of Medical Ethics 44 (6) : 392-396. ScholarBank@NUS Repository. https://doi.org/10.1136/medethics-2017-104550
Abstract: The predominant view is that a study using healthdata is observational research and should require individual consent unless it can be shown that gaining consent is impractical. But recent arguments have been made that citizens have an ethical obligation to share their health information for research purposes. In our view, this obligation is sufficient ground to expand the circumstances where secondary use research with identifiable health information is permitted without explicit subject consent. As such, for some studies the Institutional Review Board/Research Ethics Committee review process should not assess the practicality of gaining consent for data use. Instead the review process should focus on assessing the public good of the research, public engagement and transparency. © Article author(s).
Source Title: Journal of Medical Ethics
URI: https://scholarbank.nus.edu.sg/handle/10635/156592
ISSN: 03066800
DOI: 10.1136/medethics-2017-104550
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