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|Title:||EXPLORING EXPERIENCES AND SUPPORT NEEDS OF PARENTS BRINGING UP A CHILD WITH NEWLY DIAGNOSED AUTISM SPECTRUM DISORDER IN SINGAPORE : A DESCRIPTIVE QUALITATIVE STUDY||Authors:||GOH JING XUAN||Keywords:||Autism Spectrum Disorder
|Issue Date:||25-May-2019||Citation:||GOH JING XUAN (2019-05-25). EXPLORING EXPERIENCES AND SUPPORT NEEDS OF PARENTS BRINGING UP A CHILD WITH NEWLY DIAGNOSED AUTISM SPECTRUM DISORDER IN SINGAPORE : A DESCRIPTIVE QUALITATIVE STUDY. ScholarBank@NUS Repository.||Abstract:||Background: One in 150 children are diagnosed with Autism Spectrum Disorder (ASD) in Singapore and this trend is increasing. Raising a newly diagnosed ASD child is challenging and parents require specific support needs to cope. Limited studies have focused on parents’ perspectives in the newly diagnosed phase of ASD of their children. Aim: To explore the experience and support needs of parents bringing up a child with newly diagnosed ASD in Singapore. Methods: A descriptive qualitative study approach was adopted. Purposive sampling was used to recruit about 13 parents of children with newly diagnosed ASD from the Child Development Unit clinics of a public tertiary hospital in Singapore. Data were collected through semi-structured face-to-face individual interviews and analysed using thematic analysis. Findings: Four themes emerged: (1) Adjusting psychologically, (2) Changing lifestyle, (3) Contending with hurdles to services and (4) Support needs. Our findings containted the challenges and changes parents experienced to different aspects of their life because of the child with ASD and the support accessed. There was an increased need for improvements in formal and informal support networks to better meet parents’ support needs. Conclusion and Implications: This study contributed to a better understanding of the experiences and support needs of Singaporean parents raising a child with newly diagnosed ASD. It also highlighted the gaps in the formal and informal support networks which can be improved to provide better targeted support for these group of parents. Technology-based interventions and more affordable and accessible services could be beneficial in helping parents. Further studies should place more focus on the fathers’ perspective or perspective of different ethnic groups.||URI:||https://scholarbank.nus.edu.sg/handle/10635/153854|
|Appears in Collections:||Bachelor's Theses|
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